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IBD Registry is an organization that collects and manages health data from individuals with inflammatory bowel disease (IBD) across the UK. Its primary aim is to enhance the treatment and care of IBD patients by providing valuable insights and supporting research. The registry collaborates with healthcare professionals and academic groups to gather
longitudinal clinical data on IBD patients at the point of care, primarily from NHS Trusts. This comprehensive dataset, which covers over 95% of patient encounters, serves as a critical resource for improving patient outcomes and facilitating informed decision-making in IBD care. Additionally, the IBD Registry offers various tools and guides to assist IBD teams in effectively managing and utilizing the data for the benefit of patients.
