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ERN CRANIO is a European Reference Network dedicated to rare and complex craniofacial anomalies and ear, nose, and throat (ENT) disorders. The network encompasses conditions such as craniosynostosis, craniofacial microsomia, cleft lip and palate, orodental anomalies, and various ENT disorders. It operates across multiple areas, including
dissemination, evaluation, eHealth, training and education, quality of care, registry development, and outcome measurement. ERN CRANIO aims to pool disease-specific expertise, knowledge, and resources from across the EU/EAA to achieve health goals that may otherwise be unachievable in a single country. These goals include the development of clinical skills, increased patient access to high-quality expert care, and making improved diagnosis-specific information available to healthcare professionals, patients, and their families and carers. In doing so, ERN CRANIO also seeks to reduce health inequalities by standardizing practices and making high-quality care, information, and resources accessible to healthcare providers, patients, and their families and carers.
