Company Performance Metrics
AlphaNet Canada is a national patient organization and registered charity that focuses on individuals affected by alpha-1 antitrypsin deficiency. The organization provides complimentary peer-to-peer disease management services delivered by coordinators who live with Alpha-1. Its AlphaNet Disease Management and Prevention (ADMAP) program offers
tailored health education, symptom tracking, and ongoing contact to support disease management. AlphaNet Canada supplies educational resources, including the Big Fat Reference Guide to Alpha-1, to patients, families, and healthcare providers. It operates an online subscriber portal where enrolled patients can complete questionnaires, access reference materials, and communicate with coordinators. The organization also engages in patient advocacy and collaborates with health agencies and clinical research partners to support access to testing, therapies, and information related to Alpha-1.
