91
76
Growth Score 91 in past quarter
18 pts
Heat Score 76in past quarter
Company Performance Metrics
Score
Trend
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4008020
RareOlive.org advances LNPK gene therapy research and funds preclinical development for an ultra-rare neurodevelopmental disease.
About the Company
RareOlive.org is a nonprofit organization that advances research and treatment development for LNPK-related neurodevelopmental disease, also called Lunapark syndrome. The organization raises and directs charitable funding to preclinical LNPK gene replacement therapy programs, including sponsored research agreements with academic laboratories.
RareOlive.org supports proof-of-concept AAV-based gene therapy studies, animal safety testing, and preparation for eventual manufacturing and clinical trial work. It also shares information with affected families through its website, blog, and outreach activities. All donations are allocated to LNPK-focused research and related treatment development efforts.